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M9550239.TXT
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1995-03-04
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Document 0239
DOCN M9550239
TI 'We just want to be a normal family...'. Paediatric HIV/AIDS services at
an inner-London teaching hospital.
DT 9505
AU Barrett G; Victor CR; Department of Public Health, Kensington & Chelsea
and Westminster; Commissioning Agency, London, UK.
SO AIDS Care. 1994;6(4):423-33. Unique Identifier : AIDSLINE MED/95134778
AB The nature of the HIV epidemic in the UK is changing with the increasing
number of infected women and children. This recent onset means that
there are few data about the specific problems of HIV in families. This
study examines current issues in service provision to HIV infected
children and their families at an inner-London teaching hospital. A
sample of ten families were interviewed, from a caseload of
approximately 100 HIV-positive children. Of the ten children, seven were
under the age of 5 years. All the children were vertical transmissions
and six of the mothers were from Sub-Saharan Africa. Only three of the
ten children were identified antenatally. In terms of service provision,
families were very satisfied with the care provided by the study
hospital's paediatric HIV team but felt that the hospital's paediatric
and adult HIV services were poorly co-ordinated and impractically
located over different sites. Families did not have confidence in GP and
community services, preferring to use hospital services which they felt
to have more expertise in paediatric HIV. Future policy developments
will have to confront the hospital-centred nature of paediatric HIV
services and develop primary and community care services.
DE Acquired Immunodeficiency Syndrome/*EPIDEMIOLOGY/PSYCHOLOGY/
TRANSMISSION Adult Child Child Health Services/*TRENDS Child,
Preschool Consumer Satisfaction *Disease Outbreaks Disease
Transmission, Vertical Female Health Services Needs and Demand/TRENDS
Hospitals, Teaching/TRENDS Hospitals, Urban/TRENDS Human HIV
Infections/*EPIDEMIOLOGY/PSYCHOLOGY/TRANSMISSION Infant Infant,
Newborn Male Patient Care Team/TRENDS Pregnancy Urban
Population/*STATISTICS & NUMER DATA JOURNAL ARTICLE
SOURCE: National Library of Medicine. NOTICE: This material may be
protected by Copyright Law (Title 17, U.S.Code).